Sunday, June 19, 2011

Double Big News update!

Can't tell you how strange it is not to blog & not to be blog reading!

We've now been away from home for 2 weeks and 4 days... not that anyones counting ;)

Luke had his first drs appt here last week... he's now 5 lbs 3oz and 19". He's still so small... I mean my last baby was Evan and he was 9 1/2 lbs!! He's way too long for preemie outfits, yet swims in the newborn ones. Been trying to figure out formula feeding, bottles & nipples. I nursed my other two, so its definitely a learning experience to me! Does formula have to smell so dang bad!? Phew! Trying to follow the NICUs orders and beef him up... which means he should not have to try hard at feeding and not be held/passed around so much... both burn up precious calories. People think I'm nuts or something, just trying to follow drs orders! Like all babies, he's got his days & nights mixed up... but I wonder if it's only because mama is so BEAT during the middle of the night!

Grant is doing better up at the childrens hospital. They're giving him at least a few more weeks before he'll be discharged. Right now they're trying to get him out of critical care and into his own little room under the surgeons care. He's off the ventilator, oxygen, pict line removed and his surgery healing up nicely. He's sort of forgotten how to take a bottle since he's pretty much been sick his entire life thus far. The night nurse did report that he did take one last night! Baby steps, tiny baby steps!

Evan & Jake are doing okay. Jake better than Evan, he always has a blast when we're in Indiana. He loves Mamaw's driveway and all the bikes! He's handling any adjustments really well and goes with the flow. He always starts and ends his day by holding the baby...proud big brother. Evan, well, he's completely opposite. Poor guy isn't sleeping at all... so he's pretty much psychotic now. Could be his age, personality, and/or that he turned 2 1/2 last week. Who knows, but I sure miss fun & sweet Evan.

I'm a little frustrated right now. This is supposed to be a happy & blessed time right now and all I feel is overwhelmed and stressed :(

It's hard being and 18 hrs drive from home. It's even more hard that Greg had to go back to work. We always approach everything as a team and I'm definitely taking his absence hard. We've turned everyone's lives upside down here and I run the risk of appearing ungrateful when I anger at all the opinions & type of help I receive. Beggars can't be choosers, but I can't only bite my tongue so much.

Been driving up every couple days to see Grant. Yesterday started learning more about his medical care that I'll have to do once he's released and we can take him home. I'm intimidated and overwhelmed by it. I actually told them to just show it ALL to me yesterday so hopefully when I go up next it won't seem as bad to me. I would NEVER EVER make a nurse or anything in the medical field. This is totally outside my comfort zone... but I would walk through fire for my children... so bring it on (yikes!) ;)

That's us in a nutshell right now (emphasis on NUTS)!

3 comments:

CAS said...

Bless your heart. I know how stressed you must be. Our twin granddaughters, now almost 12 yrs. old, were preemies, weighing 2.5 & 3.5 lbs. It's was a very scary time, but now they are beautiful & healthy pre-teens. I always believe that God doesn't give you more than you can handle, even when we might not agree. My very best wishes for you & your family.
CAS

shelley c. said...

You are so strong. Your boys are lucky to have such a wonderful mama.

Anonymous said...

Thanks so much for the newsy update T! Hugs and loads of love being sent your way, Aunt J